Update: July 30th 2013

So, I went to the doctor for my first follow up!

Here is what I learned:
1: My kidneys are disgusting.
When you Google this sort of thing and look at the pictures, you see some really disgusting stuff. Most of what I saw were some black cyst-covered kidneys. They looked wrecked! Well, I found out today that mine look just like those (on a smaller scale).

I'd post one to save you time, but you may be eating. Here's a puppy instead!

Seriously! The largest one is on my right kidney. It's 3cm. My kidney is 12cm. That's right. 1/4 of my kidney is a cyst. The left kidney has one about the same size, but that kidney has enlarged to 14cm. The findings say: there are too numerous to count varying size cysts scattered throughout the renal cortex bilaterally. The largest cyst on the right is in the 3cm size range. The largest cyst on the left measures approximately the same. Several of the lesions are complex with septations. There is no hydronephrosis. The right kidney measures approximately 12 cm and the left kidney 14cm. 

Septations meaning walls within the cyst - that usually indicates a higher chance of them being cancerous.

Hydronephrosis meaning water in the kidney. 

I saw the scan myself (with the doctor). There were cysts everywhere. It was seriously gross. 

There is no cure. There is no way to slow the growth and progression of the cysts. One day, they will replace my kidney tissue and I will need new ones or dialysis. 

That's all for this update! Thanks for reading! I will do my best to keep you all posted.