Sunday, January 18, 2015

Aneurysm Testing?

I know I've talked about it a million times but, as you probably know by now, 40% of us have brain aneurysms, which "can rupture, causing intracranial hemmorhage and death in 8-11% of patients".

I'm not sure if that means 8-11% of the 40% or 8-11% of total patients.

Either way, it's enough to bother me. I'm a bit nervous I may be one of the 40%. So, I've been thinking (and I'm really anticipating my next nephrology appointment) of getting that checked out. I'm not sure where to start, but I'm insured now, and I'd love to take advantage of that.

But then I think about the results. What if I am one of those 40%? What would I do? Would I freak out? Could I sleep at night? Or would I be relieved and glad to know it's being monitored? In fact, if it's sizable, they could coil/fix it. That way, there would be no worries at all. But then again, if they're not big enough, they won't do anything but "watch" them. What then?

I usually like knowing what's going on with my body. It makes all the changes less scary and worrisome, and it makes me feel empowered about these things I'm otherwise powerless over. But, with PKD, it had a major downside of knowing there are two nasty things growing in my body. That I am powerless to fix my symptoms, that many of my symptoms were not even related, that this is progressive, that I am alone.

So what could this bring, if aneurysms are discovered? What bad things could come of that? Is it worth the worry it might cause? What about the positives that could come of it? No more unknown. No more senseless concern. My life might even be saved.

I wanna do it.

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